Board of Directors
Our Board of Directors is a diverse group of individuals passionate about the rights of people with disabilities. 100% of our board members either have a disability or have a close family member with a disability. Our Board of Directors reflects the socioeconomic, ethnic, geographic, and disability diversity of North Carolina.
Selection of Board members is based on a person’s knowledge of and demonstrated commitment to ensuring the human and legal rights of people with disabilities. Learn how to apply to serve on our Board.
Upcoming Board Meetings
- Board of Directors Meeting: Saturday, September 15, 2018, 9:00 am
- Board of Directors Meeting: Friday, December 14, 2018, Time TBD
Past Board Meeting Minutes
- 03/17/2017 Meeting
- 06/16/2017 Meeting
- 09/16/2017 Meeting
- 12/08/2017 Board Minutes
- 03/16/2018 Board Minutes
Meet the Board
Ernie Baldwin (Mountain Region)
Ernie is a native North Carolinian who now resides in the Charlotte area with his partner. As a young man, he was diagnosed with cancer, and he was treated with a large infusion of chemotherapy that left disabling side effects. Ernie has a wealth of experience in the pharmaceutical, computer, and construction industries. He was a Senior Analyst in the IT field for more than 30 years. Ernie is enthusiastic about Disability Rights NC, stating without reservation that when he commits to something he goes “all in.” His goals as a board member are to engage in and support Disability Rights NC’s advocacy and enforcement activities.
James Booker (Piedmont Region)
James Booker is originally from West Virginia and graduated from West Virginia Wesleyan College. He moved to North Carolina a little more than a decade ago. His work in the field of disabilities began when he worked as a counselor at a summer camp for children with disabilities. After graduating, he became a teacher’s assistant in public separate schools, working primarily with children with profound medical needs. He has since become a clinical supervisor to a direct care provider, and he has served on the Deaf-Blind Advisory Council. He and his wife have spent the last several years as foster parents to children with disabilities. The biggest influence in James’ life is his son, who he adopted at the age of three. His son suffered a TBI as a result of Shaken-Baby Syndrome and is deaf and blind. Not a day goes by that James doesn’t learn something new from his son, and he will do anything to make his life just a little easier.
Dr. Crystal Bowe (Mountain Region)
Crystal is a family physician from Ahoskie, NC. She attended North Carolina A&T University for her undergraduate studies, University of North Carolina – Greensboro for graduate studies in romance languages, and East Carolina University for medical school and residency. Prior to becoming a physician, she was a teacher in the Greensboro area. Crystal’s interest in disability rights stems from her experiences caring for her aunt and uncle, who both have intellectual and developmental disabilities. She is a strong advocate for her patients (young and old) and works to help them achieve the goal of full inclusion and independence in life.
Adebola Desalu (Central Region)
Bola relocated to Raleigh from the northeastern part of the United States for a management position with Sprint’s RelayNC program, a service that facilitates telephone calls for people with hearing impairments. She travels the state and has heard many frustrating tales of discrimination against deaf people. Bola, who has a hearing impairment, has volunteered with national and state organizations serving people who are deaf. Upon learning about Disability Rights NC, she felt a connection to its cross-disability mission as a way to put critical mass behind issues of civil rights, advocacy/law enforcement, and policy development. She has degrees in PR and social work, using the latter in an earlier career counseling people with mental illness.
Tina Dicke (Eastern Region)
Tina is a North Carolina native and currently resides in Hope Mills. She has worked at Legal Aid of NC for more than two decades. As a litigation paralegal, she assists eligible clients in the areas of disability and public benefits. In addition, as a certified Navigator, she provides consumers with enrollment and post-enrollment assistance regarding affordable healthcare matters. Tina also served as a judge and chief judge on the Administrative Court of the Lumbee Tribe of North Carolina and later served as a justice on the tribe’s Supreme Court. Tina understands the needs of persons with disabilities on a personal level as she has survived cancer on two separate occasions and also manages a rare lung condition. She is a true advocate for ensuring equal justice for all and is extremely excited to serve on the Board of Disability Rights NC.
William Donohue (Piedmont Region)
Dr. Donohue was born and raised in Iowa, attended Michigan State for his graduate education, and served as dean/vice chancellor for student life for 33 years across 6 states. He capped his formal work life as executive director of The Special Children’s School in Winston-Salem. In retirement he plays golf, raises popcorn, and shares a wonderful life with his wife Deborah and three children, Carrie, Jeremy, and Lindsay. His background with disabilities includes family members with polio, ALS, Down syndrome, Alzheimer’s and Muscular Dystrophy.
Bryan Dooley, Secretary (Piedmont Region)
While earning a degree in history at Guilford College, Bryan won numerous leadership awards and scholarships, wrote for The Guardian newspaper, and worked as a diversity coordinator. Bryan is now a journalist and columnist with Camel City Dispatch and a board member at The Adaptables Center for Independent Living in Winston-Salem. Bryan, who has cerebral palsy, is an advocate for people with disabilities. He began advocating from a young age, earning state and national awards by high school, including the Yes I Can award in assistive technology from the Council for Exceptional Children and the Matthew Graziadei Achievement Award. He participated in the Youth Leadership Forum and numerous youth groups, including the National Youth Leadership Network and the American Association of People with Disabilities. He completed the NC Council on Developmental Disabilities Partners in Policymaking program in 2014 and actively participates in the Advancing Strong Leadership in Development Disability Initiative, NC Post-Secondary Education Alliance, Community Emergency Response Team, and the Centerpoint Consumer and Family Advisory Committee.
Victoria Ekstrand (Central Region)
Victoria (Tori) is an assistant professor in the School of Media and Journalism at the University of North Carolina – Chapel Hill, where she teaches media law and researches web accessibility for people with disabilities as a First Amendment issue. She spent ten years teaching at Bowling Green State University in Ohio after receiving her Ph.D. from UNC in 2003. Before that, she worked for The Associated Press in New York for nearly a decade; her last position there was as director of Corporate Communications. Tori has students, colleagues, friends, and family members with various physical and mental health disabilities. She shuns “inspiration porn” in media stories about people with disabilities and firmly believes that disability law and policy must be crafted with and by those it affects: “Nothing About Us Without Us.”
Itnuit Janovitz Freireich, Treasurer (Central Region)
Itnuit was born in Mexico and grew up living in both Mexico and France. She graduated from North Carolina State University with a doctorate in mathematics and was a professor at the Center for Research and Advanced Studies (CINVESTAV) in Mexico City and later at St. Augustine’s University in Raleigh, NC. She currently works as a children’s book distributor. Having had very difficult experiences with navigating the special education and early intervention systems, she is interested in helping parents of children with special needs gain easy access to the assistance and information needed to ensure their children receive the services and education they require. She also is interested in advocating for better inclusion services in the public school system.
Rachel Fuerst, Vice-Chair (Central Region)
Rachel is a partner with Henson & Fuerst, a law firm founded in eastern NC by her father and two friends. Much of her professional work involves clients who have been abused, neglected, or injured in group homes and nursing facilities. She represents clients before the Department of Veterans’ Affairs and the Social Security Administration. As the granddaughter of a person with sensory and age-related disabilities, she is keenly aware of the challenge of disability on the family and wider community. Rachel appreciates Disability Rights NC’s focus on systemic change as a way to proactively impact institutions and policies. She is especially interested in improving conditions in group homes and nursing homes, saying “If more North Carolina citizens are involved with disability rights, then we have a better chance of convincing those who make the laws that more is needed to protect those who are most vulnerable.”
Dr. D. Larry Gregg, Sr. (Mountain Region)
Larry is a native of Tuscaloosa, Alabama but has lived in North Carolina since 1992. For more than fifty years, he was a Baptist minister and university professor. Though retired, Larry remains active and serves as associate minister at First Baptist Church of Statesville, NC. He has a long history of advocating for others, most recently as the Rutherford County delegate to the Senior Tar Heel Legislature. At the age of 13, Larry had viral encephalitis and became a grand mal epileptic who experienced severe seizures into early adulthood. In addition, he cared for his mother for more than a decade following a massive stroke, and he has a grandson with ADHD and seizure issues. Larry has a bachelor’s degree from Jacksonville State University, a master’s degree from Samford University, and a master’s degree and doctorate from The Southern Baptist Theological Seminary.
Kim Lan Grout (Central Region)
Kim Lan is a writer, photographer, and disability advocate in Durham. She is the founder of the Redefining Disabled Project and a co-founder of the Accessible Icon Project–Durham, NC. When she was 18 years old, after a long saga with a congenital vascular syndrome, Kim Lan elected to have her left leg amputated above the knee to save her life. What most people would consider her disability, she considers her liberation. Now, 15 years post-amputation, Kim Lan lives a full life alongside her husband and their two daughters, the younger of whom was diagnosed with Type 1 Diabetes at just two years old. It is with this love for life and love for her “broken” body that she works to make our world more inclusive and aware; fights the able-istic status quo; and seeks to show our community that disabilities don’t have to be the end of one’s life, but rather can be a source of love, tolerance, patience, and determination.
Denise “D” Jones, Chair (Eastern Region)
D is an individual with autism who shares her tools for living an independent life with other individuals with autism through guest speaking events at ECU Department of Occupational Therapy, TEACCH, and other programs across North Carolina. She provides personal insight to help professionals understand how to better serve people with disabilities. She has been a Physical Therapist Assistant for more than twenty years and is a provider for in-patient and outpatient care services. She also has served as an adjunct instructor at Craven Community College in its Physical Therapist Assistant Program. D received her bachelor’s degree in psychology from Rutgers University, a second bachelor’s degree in liberal arts science from Neumann College, and her associate’s degree in physical therapy assistance at Union County College. She first became involved with Disability Rights NC when she attended the DATE volunteer training. She wants to be a voice for others.
Gaile Osborne, PAIMI Advisory Council Liaison (Western Region)
Gaile is a native of Alamance County and currently lives in Asheville with her husband and two children. Her desire to get help for her children—adopted from significant trauma backgrounds—led her to a full-time career as an advocate at FIRST Resource Center; which offers services for persons with disabilities and the people who love and support them. Prior to joining FIRST in 2014, Gaile spent 17 years as a special education teacher in North Carolina. She has her master’s degree in special education from UNC-Greensboro and currently holds NC teaching certification in four areas. Gaile brings experience to the board as a parent of a child with special needs, an advocate in schools in western NC, and a former special educator.
Jill Britton Scercy (Eastern Region)
Jill has lived in North Carolina for more than 35 years. She lives in Greenville with her husband and has three grown children. She graduated from East Carolina University and is a licensed marriage and family therapist. She worked in public mental health and then private practice with families and children with mental health challenges and developmental disabilities. Eleven years ago she began working for the UNC-Chapel Hill TEACCH Autism Program and is now the director of the Greenville center. Jill has been involved both locally and on the state level with advisory councils for public education. As the mother of a son with Autism, she co-led a parent support group for 14 years. Jill is honored to serve on the board where abilities are emphasized and all rights for individuals are protected.
Deborah Whitfield (Mountain Region)
Deborah joined our Board of Directors in 2012. She is an Assistant Clerk of Mecklenburg County Clerk of Superior Court in the judicial hearings division, where she supervises the civil commitment, adoption and default judgment units. Before joining the Court, Deborah practiced law at the Council for Children’s Rights in Charlotte for nine years, representing children who were abused, neglected, dependent and delinquent with mental health conditions and developmental delays. But many in the disability community may know her better as the Program Director of North Carolina’s Partners in Policymaking program, a nationally replicated leadership and advocacy training program funded by the NC Council on Developmental Disabilities. She is co-founder and executive director of Advocacy Institute, Inc. In 2011, Deborah was appointed to the NC Board of Education/Department of Public Instruction Council on Educational Services for Exceptional Children. She earned her bachelor of arts degree from Hampton Institute in Sociology, a master’s degree in city and regional planning from UNC at Chapel Hill, and a juris doctorate degree from North Carolina Central University School of Law. She is licensed and practiced law in Texas where she served, for a time, as a municipal court relief judge before returning to her home state of North Carolina in 2002. She is the proud parent of two daughters, the youngest of whom is an 18-year-old with Down Syndrome.